Shopping for salicylate-free Polysporinon on the Guaifenesin Protocol For Fibromyalgia
February 4, 2012 
20 Comments
for accurate information about this treatment, especially if you choose to do it independently. I would also urge you to join GuaiGroup from their website for asking questions related to the Guaifenesin Protocol. I have a video which teaches how to do this. "You must take responsibility for the protocol. Physicians are NOT trained to recognize salicylate-containing ingredients. If you fail (and do not get well), you will send a message to your doctor that the guaifenesin protocol doesn’t work, and the opportunity <b>…</b>
Treating and Beating Fibromyalgia and Cfs: The Patient’s Manual
Foods to avoid? What types of vitamins are more important than others? Is there a website that has meals for you to try?
I have a family member with this syndrome and I’m also doing an extreamly leingthy report on it for my biology midterm.
I can’t seem to find an explaination for this question online…anything you know would be greatly apreciated!!!
Oh and best answer gets 10 points! : )
I have rheumatoid and Osteo Arthritis..Today is one of those days I can hardly Walk!!!!! The dew point is up to 70%..Its absolute agony..The best thing for me is mini exercises..thru the day and alot of water…..and of course taking a HOT shower when the pain gets unbearable…
Yes yes when the rain is coming in or the weather is gonna drop or rise 10-20 degrees..Every muscle, joint and fiber in my body hurt so bad i can barely move…..
I have Fibromyalgia, and also suffer from back problems, but I really need to do some lean muscle building exercises to keep my muscles from atrophying (sp?lol), or wasting away.
Not to mention I have a little jiggly stuff on mah belly that I would love to make dissapear!
Do any of yall know some easy exercises that I could do?
I’ve tried crunches, but getting back up off the floor is dang near impossible! lol
Also, is there anything to maximize the workouts that I can do?
Thank you for any advice!
Sheena
i suffer from this start easy swimming or light walks until you build up your stamina, Ti Che (bad speller) Pilate’s or yoga may be the way to go or underwater aerobic
A friend of mine suffers from horrible fibromyalgia, and to help it she has been using a little machine that sends little electric shocks to her back. I think it’s called electronic muscle stimulation.
The other day, the person who she was borrowing the machine from needed it again, so she had to give it back. They’re really expensive and her family can’t afford it. Since she gave them back, she’s been in constant pain and it’s awful to know that she’s suffering so badly. As a gift, I want to get her friends together to chip in some money to buy her one. I want to know how many people I’m going to need to get together to do this, though.
How much would one cost, and where could I get it?
-Thanks!!
What a great friend you are! Your best bet is to google TENS unit or muscle stimulators and see if you can find one similar to the one she was borrowing. They can range from around $100 up to $600. Multiple sites carry them, even Amazon has a few.
I have a Dr. Ho muscle stimulator that I’ve used over the years, and they still sell for about $140. These gadgets can make a difference. I used mine on my shoulders when I would have to drive longer distances, and it really did help me.
You could also contact a local physical therapy department and get some suggestions.
Hope you find a good one at a reasonable price! Good luck!
I am looking to change my pcp and would love to find a doctor or nurse practitioner who is knowledgeable about fibromyalgia. I would like to stay in the Boise area.
THANKS
Your best bet is going to be going through a phone book, prefereably an online one like http://www.dexknows.com, becaues the information is going to be updated much quicker and you can modify search fields to find exactly what you want. Or at least point you in the right direction.
When you are making these calls, be sure to ask them if they know any doctor that specialices in your condition… you may be able to get a referal through another doctor.
I had the first two views taken, but when the 45 dergee angle was required, or the 90 dregree angle, it was too painful.
I couldn’t even let them get the whole chest muscle in the first views.
Has anyone else had this problem?
I have fibromyalgia and I’ve also had two mammograms (the most recent one done yesterday because I have a family history of breast cancer) and I was actually able to complete the test. It only took less than 5 minutes. Yes, it did hurt for about a minute but she was then able to get all the views in.
My problem came afterward yesterday where I had a bit of pain in the chest wall area when it came to residual pain. But it wasn’t anything like the first mammogram I had at age 26 when I had some problems with my breasts. And at that time they were using a much different technology where the pain was really something when it came to the test, and I also had not only pain after the test but a burning sensation that lasted several hours after I had the test. I didn’t have any burning this time, just a bit of pain at the chest muscle area.
A lot of hospitals and imaging places are now using digital mammography which isn’t as bad as the old ones that were used.
I would definitely let your gynecologist know what happened as well as your dr that treats your fibromyalgia to see what they recommend for the future.
I was wondering, if my doctor prescribed that I have this would Medicare Insurance assist in paying for this? I had a feather one but it’s 7 years old now and pretty well flat, giving me no benefits of pain relief at all. There is a really nice one out recommended for Fibromyalgia patients that looks very nice but costs about 400.00 which is tough to come up with when you’re on a fixed income.
I thank you all for your answers but I really wanted an answer to my question if anyone had the answer not information on Fibromyalgia or other insurances. I have been diagnosed with Fibromyalgia for nearly 10 years now and take Cymbalta, Vicodin, Soma, etc. for the pain managment as well as therapy, etc. Nor am I in the market for a mattress, I have a wonderful Select Comfort mattress that helps immensly but the feather mattress pad I have has worn out and I saw that there are some that are highly recommended for people with Fibromyalgia that costs a considerable amount more than what I paid a few years ago for my old feather mattress and just wondered if anyone knew whether Medicare would assist in payment if it were prescribed by my doctor.
Bama ~ you comment on taking if off my taxes at the end of the year was very helpful though…thank you for that suggestion and I sure hope things get better for you and your situation….soon!
so far I have not met anyone who has been successful in getting mattress topper or mattress paid for my insurance, medicaid and/or medicare (folks iwth Fibro, folks with MS, and quadraplegics included)
I would get your doc to prescribe it.. then at the least you can save up money & then deduct from your taxes if you itemize deductions.
I personally think insurance should cover… I hhaven’t been able to get insurance to cover ortopoedic shoes, despite leg length difference and DJD/DDD along with Fibro, Rheumatoid Arth, Osteo Arth & a myriad of other meidcal problems. I had bought my own very expensive mattress, mattress topper & 2 pairs of ortho shoes.. total investment over $5,000.00… then the apartment above me caught fire, the wiring that was not fixed by teh landlord was the problem.
I have not been able to get his insurance, my health insurance, or any other insurance to pay to replace this stuff & that is with the help of a lawyer who is also a State of ALabama Sentator.
If you do get it covered, then please share this with the rest of us!! If you are successful, then I would like to share that with the FIbro Support Groups that I am in
Dear doctor,
When a fibromyalgia patient comes to you and they are in tears because they live day in and day out in terrible pain it is not right ofyou to assume they are depressed and send them on their way with antidepressants telling them it is their depression causing their pain.
It is you dear doctor that is causing their depression. How? Well when people are in pain they beleive the doctor will do everything they can to ease their suffering and when the doctor fails to treat their pain or take it seriously the patient is sent out the door with no hope.
What are the patients options? Well they can go to the ER on a regular basis and be emotionally abused some more by the staff and then marked as a drug abuser or at the least made to feel that way.
Or they could just go home and commit suicide. I have read several stories on people with Fibromyalgia who have commited suicide and if you would like to hear one of them just go to youtube and look up Fibromyalgia and suicide.
People with Fibromyalgia are very lucky when they find a caring doctor but they are few and far between.
Doctor if you had to live one ay in the life of a person with Fibromyalgia I garauntee that your approach on this matter would change greatly. You would become obsessed with finding a cure and in the meantime bring as much releife to those suffering from Fibromyalgia as possible.
It is not fun to wake up with a head ache, stiff back, sore legs, sore stiff kneck, and pain shooting through out every joint, muscle and bone of your body. To top it off your tired because the sleep you did have was not refreshing enough or you could only sleep a couple of hours because the pain didn’t let up.
I ask you does this sound pleasant? Does it sound like something that you should just learn to live with.
I ask you what would it feel like to break your leg and dislocate a shoulder and go to work and act as though everything is fine. Wouldn’t the pain be to much?
Well for allot of people with Fibromyalgia the pain is to much and when the patients cry the doctors are not moved in any way to find their patient, the one they are suppose to be CARING for a good treatment plan to treat their pain.
Some doctors say oh Lyrica it’s the Fibromyalgia miracle drug. I can tell you doctor that it is not the case at all. It might help some people, but it doesn’t help as many as you all would like us to beleive. Frankly for most it causes more problems than it’s worth.
This whol exercise and loose weight thing is for the birds too! Can you beleive that allot of people suffering from fibromyalgia were thin or at least at a healthy weight before they were left to suffer.
People with fibromyalgia are not looking for an easy way out as some nurses and doctors beleive. I know I have read through doctors and nurses blogs. I see what they think of people sufferinf from fibromyalgia. They think we want disability and that we want to be on drugs.
Well I can tell you doctor that my doctors office doesn’t write out narcotic pain medciation and if that was what I was after I could have easily change to a doctor I know that will. Also if I was afterdisability I would already have applied since I have not been able to work in more than a year.
I keep hoping that I will find the help I need so that I can go back to work and resume as much of anormal life as possible.
I have played the guinea pig for far to long and have been made very sick several times in the process. I’m tired of this. I know what works for me, but dare I ask and have you think I’m a drug abuser.
I know what works for me because times when I have had UTI pain and been given pain medication for it. I used those pain meds to treat my Fibromyalgia pain and guess what doctor I felt good for the short time I had them. As in good I mean normal, I could clean my own home, sleep at night, and if that was my regular medication I could have possibly even went back to work.
I’ll keep quite though for fear if I mention one thing particular that I know will help you will automaically assume I’m addicted to this particular drug and my pain would never stand a chance of beinf treated or taken seriously.
So for now I’m your little guinea pig doctor.
How long will it take you to realise that all you have to do is give me pain medicine and I could be able to function.
Drug test me I don’t care, but you might be surprised to learn I have no drugs in my system and also you might be surprised if you do a back ground check and see that I have never had a drug problem!
sincerely your guinea pig,
A fibromyalgia sufferer
i’m not a doctor but i am a nurse, and have been one for 20 years. let me explaine something to you. fibromyalgia is not just pain it is a pain caused by nerves. you can not deaden nerve pain. you can only decrease it with certain pain medications. understand too that, unfortunatly society has created the drug seeking patient. the doctors livelyhood, is based on his license to practice medicin. if he is ever investigated for giving narcotics out freely, he is putting his livelyhood on the line. i know you are angry and in alot of pain. i totally understand. i have arthritis and am allergic to all nsaids (vioxx, celebrex) and have to take lortab when i get pain medicine. my doctor hardly gives ibuprofen for broken bones and i respect that. but i had to prove to him i could use these medications responsibly. he also had to almost code me at his office becuase he gave me a sample of mobic and he had me wait there until he knew if i was going to have a reaction. he had to give me breathing treatments and a shot of fast acting steroids. but even though he knows i can’t take them he insist on seeing me every year. so find a doctor that is ethical and knowledgable
I was diagnosised with fibromyalgia and I have many allergies to pain meds, including NSAIDS
I went to massage therapy school to be my own boss, and discovered a great fringe benefit – it helps with my pain!! And after having massage on a regular basis, it comes back less often and with less intensity.
Blessed be,
Gyspy
Hi,
I was diagnosed with Fibromyalgia after having my daughter. She is my first child and because I was unable to be diagnosed for so long, I was on extended maternity leave. I was put on Long Term Disability and told I was approved through 2044. I was told I would be forced to file for SSI and an attorney would be appointed to me. I have been all the way to court and I was denied. Now Met Life has told me that my Long Tern Disability is ending October 14th. I am totally scared and don’t know what kind of work I can do. I’ve hired a new attorney to either appeal or re-apply for SSI, but in the mean time, what do I do? I need some ideas on what I can do that has the flexibility that a Fibromyalgia patient needs?
Hi: i felt so much compassion for you reading your email. I can identify with that fear. I have a couple of suggestions that might help you. First of all, every day when your daughter is taking a nap i would work on my body with some really gentle techniques. LIke simple stretches that do not strain your tendons in any way. i would also practice some gentle breathing exercises. you can find these online for free. this gives me such relief i can’t describe it. we tense up due to pain and exacerbate the problem big time. as far as a job goes what is your training in? if you have no particular skills could you take in a couple of kids as a nanny? give some other working mother relief? if you are skilled could your hire yourself out as an independent contractor in your field and work from home? many many employers now are looking for part timers because its saves them the expense of health care and benefits. but it would pay your rent or mortgage. you could also sell some multi level products from home if you have the temperament for that. let me know what you think ok? sincerely, rosemarie